The Long Goodbye : Dementia Caregiving & Other Stories

The Long Goodbye : Dementia Caregiving & Other Stories

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Dementia / Caregiving Related 'stacks

During & After :
Disability, Dementia, Aging, Addiction, Illness,
Death, Grieving, Healing, Advocacy

There are lots of kinds of caregiving.

Some of us are advocating & caring for parents or partners with dementia or other illnesses.

Some of us are caring for ourselves or children living with any number of things currently under attack and undercut by our government: LGBT+, disability, autism, the prison system.

If you know someone who is struggling, please share this page with them. If there is someone I’m missing, OR if you want to be removed from this list, please email me directly.

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The Dementia Chronicles
The journey of dementia is unique for every single person with dementia, as well as his or her caregivers. I'm embarking on what is possibly my second dementia journey, having concluded my first one on November 30, 2024. Let's survive it together.
By Kirbie Earley
Falling Leaves
My Personal Substack features information about dementia and caregivers of people with dementia from the perspective of a person of dementia, me.
By Judi Bailey, M.Ed
Alzheimer's Caregiver
Sharing my story about caring for my 58-year old husband with young/early onset Alzheimer's. Remembering our journey and connecting with others.
By Tanya Reynolds
Dementia Times Two
Witnessing Mom, Dad, and half the country lose their minds.
By Kirsten Silva Gruesz
Alzheimer's Home Caregiver
Helping home caregivers of loved ones with Alzheimer's along their journey.
By Sammie Marsalli
Dementia's Daughter
Emerging from 10+ years of my parents' Alzheimer's and FTD while mothering two young children. Reflections on 'sandwiched' caregiving, dementia, grief and navigating the UK's social care system.
By Sasha Neal
Carer Mentor: Empathy & Inspiration
Heartfelt empathy for Caregivers. A hub of practical tools, resources, and experts' insights. A portal of hope and community network.
By Victoria
The Disabled Ginger
A place to learn about disability rights, being chronically ill during a pandemic and how to cope with losing your health & independence.
By Broadwaybabyto
You're Right, I Do Look Tired
I'm not here to sell you anything bought or processed, you know, as a career. I’ve found that writing honestly about my life has connected me with others in a most meaningful way. I would love to learn from you as well, let’s get real together ❤️
By Eileen Dougharty
Dispatch from Bewilderness (Proudly Niche since 2006)
Nominated for Best American Essay and Pushcart Prize. Proudly niche since 2006. Faith, hope, grit and wit, in posts of 2 minutes or less. Subscribe FREE as long as Substack allows. No cost. No risk. No obligation.
By Judith Hannah Weiss
Can I Do It Alone?
I'm what some call an elder orphan. Widowed, no kids, no family nearby. Can I carry on alone? Yes, I can, and so can you. In this substack, I will share what I have learned about living and thriving solo.
By Sue Fagalde Lick
What Comes Next?
Something odd will cross my mind, or a memory will catch me off guard, or my monkey mind will swing from the ceiling fan, or a tiny ant will crawl up the bookcase next to my chair. Then I get curious and curiosity is the first step in an unknown direction
By Abigail Thomas
The Salty Crone—Prajna O'Hara
Writing from undefended heartbreak—for what has been shunned, lost, or betrayed to be salvaged—to restore feminine love—to explore archetypes, creative imagination, dreams—the return to our soul home.
Distracted by Pretty Things
A place for those who are delighted and distracted by the beauty in everyday life - a diary of sorts where I share stories, musings, and occasional obsessions with others who are muddling through life trying to find all the beauty they can along the way.
By Leslie Senevey
AnnaGrams
On creativity, hope, and living life on your own terms. Plus, free romance/erotica, poetry, and links that make you smile or make you think.
By Anna Pulley
Frisson for Freaks
Anonymous medical professional with a history of blogging-- writing about life status-post autism diagnosis, and navigating a neurodivergent romantic partnership. It's not love on the spectrum, it's autism gone wild!
By Sanna Salanimi
The Next Write Thing
Essays about my dysfunctional family and my often fabulous gay father, coming out as a writer, depression, working a 12-Step program for recovery from disordered thinking and eating. Sometimes it's funny, sometimes it's sad. It's all me.
By Nan Tepper
There’s Nothing Wrong With You (And There Never Was)
Kelly Thompson writes about how to recover, find your badass, kick ass, and align with your true Self. She is editor and curator for The Rumpus column, Voices on Addiction.
By Kelly Thompson
Gayle’s Substack
I write about a variety of topics include personal stories, some about forgiveness, travel, adventures in the dating world and caregiving my formidable 100 year old social media influencer mother and first time author. See MILDRED'S MINDSET book
By Gayle Kirschenbaum
I Write Hard Things
I share stories of grief, healing, and resilience from the perspective of a black woman in midlife. With humor and honesty, I explore the complexity of motherhood, marriage, parenting, autism, mental health, creativity, self-discovery, and black culture.
By Karen Wesley
Black Sheep Mom
Confessions from the mother of an American prison inmate.
By Bridget Young
Momspreading
The inexpert endeavors of a supposed parenting expert.
By Sarah Wheeler
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